This is my blog, about our life - our family and my daughter B who has a rare degenerative neurological disorder. Is this blog mean't to be humourous, a venting mechanism or just a diary of events? We will see.
Thursday, 30 October 2008
Challenge for you - things to make me laugh
In need of some chuckles, so please post in comments anything that you think may make me laugh or even smile!
Think Rosie may have succeeded in raising a chuckle this afternoon. she had gone to bed after lunch...bad week of the month very fiityand extra AEDs lef her slepy at lunchtime....went in to her a littlelater to see she had destroyedher peg...BUT I could not find the littlepice off the back...hunting hi and low I notice her breathing a little odd....a closer inspection discovers the missing part firmlylodged up her nose...there followed a battle of armsand legs and wit and strength to extracate said part wash and reattatch!
B was 2 when we knew something was wrong. She started to stumble and fall. After being told she would grow out of it and a misdiagnosis, at the age of six we found out something was possibly degenerating - the cerebellum - in her brain. A year later, it had further. At age 8, we got her diagnosis. Other parts of her nervous system are involved too. The cerebellum is responsible for balance and co-ordination. So until B became a full-time wheelchair user at the age of 10, she was my little wobbly pumpkin. Her condition is extremely rare (3 in 1 million) and is called Ataxia Oculomotor Apraxia 1.
3 comments:
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Think Rosie may have succeeded in raising a chuckle this afternoon.
she had gone to bed after lunch...bad week of the month very fiityand extra AEDs lef her slepy at lunchtime....went in to her a littlelater to see she had destroyedher peg...BUT I could not find the littlepice off the back...hunting hi and low I notice her breathing a little odd....a closer inspection discovers the missing part firmlylodged up her nose...there followed a battle of armsand legs and wit and strength to extracate said part wash and reattatch!
KiDs who'd have em?
Jack has finally learned a joke (remember his last attempts?!)
What do you call a sheep with no legs?
A cloud!!
.... any chuckles??!
Val
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