Update

So paediatrician thinks that the spots on B's legs are unusual and doesn't know what they are so sending to the dermatologist. Been there for 5 weeks. Just turned up one day and haven't gone since! Note the purply legs too.

and she believes that the protein in her urine is nothing to worry about and is orthostatic proteinuria which basically means you get protein in your wee when you stand up and sit down?!

But is going to do a 24 hour urine collection to check..

Tuesday B tried out the hippocampe all-terrain wheelchair..This nifty chair can go on sand, off road and will make it alot easier for us to go out and about. Don't get me wrong it still requires some strength but it will be easier than our current resources. It even has a little ski that goes on the front for snow! Fingers crossed we can get the £3000 funding required for it. Will open us some new doors for us.