Touch wood

I haven't been able to post a post like this for as long as I can remember BUT right now I feel I need to share. Although I still am seeing small signs of degeneration physically, for the first time in a long time B is WELL. I haven't seen any seizures for a few weeks, she has energy for the first time in a long time -she just doesn't seem so tired all the time and her headaches have been few and far between. No vomiting either. Proof is in the fact she isn't going to the GP at school every week like she was.

I am right now just holding on to that because it is really precious to us.

Keep it up babe
xxx