For confidentiality reasons I cannot go into much detail but today I met a very newborn baby who potentially (and very likely has) a disabling condition. His parents did not know about his potential condition when he was in utero. To say it was a shock to them is an understatement. He came to our unit where I am on placement initially this morning for some blood tests to be taken and then later again when he got a bit cold. I cared for him and gave him lots of cuddles and fed him from a special cup.
I told the nurses that I saw the baby with potentially X and not the X baby. I felt sad for what the parents will go through with this discovery, for their possible losses of dreams and for all the hard things that come with having a child with special needs - things I do not need to spell out. But...I also felt that I was holding something very special in my arms.....he was beautiful...He would bring his own uniqueness to the world and the world should be honoured to have him.
Good luck little man
Day 109
5 years ago
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5 comments:
Our children are gifts we just have to remember that when times are hard and scarey.
Guess it probably wasn't the right time to give them the special kids website address?!
Hopefully they will be able to have loads of laughs and fun amongst the heart ache they will no doubt feel.
I remember one of the nurses in intensive care saying Matthew had a presence - even after she put him down she could still feel him against her - something she didn't feel with the other babies - am sure this baby will make his presence felt on those around him too.
Glad you got to be there for them. Even if only with silent thoughts for them.
hugs
The baby and his parents are lucky to have such a caring nurse who truly understands xxx
glad you there for them...keep telling the parents and nurses how beautiful he is.
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