Friday (25th September) was International Ataxia Awareness Day. I wore my t-shirt to university and B wore hers the day before and on the way home (she had to wear uniform most of the day friday because they were having their school specialist status launch and as head girl she had to have pictures taken). She wanted to raise money. She raised over £17! How fab is that.
I stood up at the beginning of our first lecture that day and told my fellow students a little about ataxia and also how it effected our lives. Perhaps I have made at least 33 nurses to be think a little and maybe recognise the name if they ever come across someone with an Ataxia.
every little word of mouth helps.....not a cure but one day maybe they can find something that helps
Day 109
5 years ago
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2 comments:
Congratulations on your awareness talk...these things go in and sit and brew then maybe one day mean something!
As for your comment on my blog...I think you probably know more than well how my heeart hurts.
love you
hugs
How brave of you, to talk in front of people about something that yes matters so much but is also so emotional for you. Well done to both you and Beth xxx
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