It's not easy to write this

but I'm scared.
Our camping trip brought new and scary stuff B's way and I am really not sure how to feel. It feels a bit surreal to be honest.

She had seizures. Not the stary absent ones we previously suspected but a type of partial seizure where you are semi conscious so aware and your body is doing stuff you can't control. First one happened after she had fun on the bouncy castle on the Saturday - right side weak, unable to open her eye, the other eye rolling around, twitches and mouth going in a chewing motion. Witnessed by others who know all about seizures.

Second was on Monday night. During the day she got hysterical at Ikea during some building works - she doesn't usually get that noise sensitive. Then in the evening, she had a seizure after jokingly trying to knock something out of my hand. Face contorted, arm spasmed. She came round and was hysterical, saying she was really scared. So were we.

Three more happened over the next few days - head off to one side, mouth open, staring, arm and legs twitching.

Neuro not available so phoned the Paediatrician upon return. Says it definitely sounds like seizures, we need to keep an eye on her, neither of us want to do any medicating at this point. Home could be the best medicine. She was extremely tired and overstimulated. My worry is that she has never done this before (or that I know of) during similar periods of exhaustion. So what is going on?

Yesterday at home, she woke with a bad headache and extreme nausea. She had a tiny internal nose bleed.

Waiting to hear from the Neurologist- Update - got an email. She wants me to let her know how B is after the weekend. Can up her new migraine meds which are actually used for epilepsy in higher doses but right now I do not want to do that, the side effects on a higher dose don't justify it unless we see more of these new seizures. I feel like even more of spy now...watching her all the time. Poor kid.

Why does it seem like we are always dealing with something else? This is scaring me now. Its new territory and I don't like it.