One year on

and B is still getting headaches. They have gradually got worse and not responded to any preventive medication. Thankfully an MRI rules out tumour or water on the brain. Rest at school helps at school but episodes still occur at home. Fast forward to this summer. Her neurologist starts her on a drug called Topiramate which at is in higher doses used for epilepsy, in lower doses for migraine. So the start of the holidays, we start her on the small dose and gradually increase to the recommended level for migraines. In the meantime, she has those seizures and sickness, headaches on return home. So there is some thought by her neurologist that we may need to increase it up to the epilepsy levels. That is not what I want right now. But I say, last week, the good news is that since she has started she has only had those couple of headaches. Fast forward again to today, a pale wiped out girl, two headaches and a spontaneous vomit later over the course of a week.

What the h*ll is it? If its not responding to strong migraine tablets, is it in fact seizure activity? Migraines and seizures are often mixed up. What if in fact these migraines over the past year, are actually seizure related? Who knows?

What I do know, is it kills me to see her get so unwell so often and not know why? It scares me stupid and it is so exhausting watching and waiting for the next thing to happen. Because it always always does.

and then there is her ruddy feet falling to bits and causing her pain all of a sudden. Just leave the kid alone. Please.