B has to stay off her feet until at least thursday when she sees the doctor. Her feet are swollen, freezing and pressure sores are developing on the balls of her feet. Due to her neuropathy a bruise from 3 weeks ago is still there and a new one developing. They are going to review her orthotic boots. They want to get her back on her feet as soon as possible to maintain strength in her legs but she cannot stand without pain right now so that needs to be addressed first.
I spoke to the Care Manager this morning about how she was overnight etc and whether she was settling in. She said she seemed ok. The fact I havent had a text message or a phone call is a good sign and I feel a bit better about it. I told the Care Manager I wasn't happy about B being at the end of that corridor especially after what happened in the summer holidays and we agreed if she isn't happy then it can be reviewed. B may wait until she comes home Friday to let me know how things are.
I'm so tired. I didn't sleep very well, I cried alot last night. It is really really hard to hand over your unwell child to someone else. I know in my heart they will look after her. They always have. I am scared stiff she will start having seizures again once school gets going and she gets tired.
I need some emotional time out. So if I am quiet, that is why. Too much going on and my brain is going to explode.
take care
Day 109
5 years ago
Posts
2 comments:
Im glad she seemed okay at school today. Ugh her poor feet .. Ive been thinking of you both today.
Seizures are so scary, and when they arent typical tonic clonic it can be hard to explain to others how it affects a child. I wouldnt be happy with her being so far away from the eyes and ears of the staff either Robyn. Im half hoping that Beth does want to move just because I know if she does you will sleep a little easier .
xxxx Sandy
Lots of love to you, Robyn, from Sarah C xx
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