This is my blog, about our life - our family and my daughter B who has a rare degenerative neurological disorder. Is this blog mean't to be humourous, a venting mechanism or just a diary of events? We will see.
Sunday, 9 March 2008
Just found out someone I know through the charity I help to run gave their new baby my name as their middle name because of me. The reasons why have me bawling. I wish I had belief in myself like they have in me. Nevertheless I feel honoured. I hope I have made a difference in this baby's mums life by some of the things I have done through the charity. She deserves it. All of them do.
3 comments:
Anonymous
said...
You have made tremendous difference in so many people just by being you and showing that you care. Don't ever change.
Might be a lesson to me too to take on what people say when they praise us, after all, would you tell someone they were great if you didn't believe it!
B was 2 when we knew something was wrong. She started to stumble and fall. After being told she would grow out of it and a misdiagnosis, at the age of six we found out something was possibly degenerating - the cerebellum - in her brain. A year later, it had further. At age 8, we got her diagnosis. Other parts of her nervous system are involved too. The cerebellum is responsible for balance and co-ordination. So until B became a full-time wheelchair user at the age of 10, she was my little wobbly pumpkin. Her condition is extremely rare (3 in 1 million) and is called Ataxia Oculomotor Apraxia 1.
3 comments:
You have made tremendous difference in so many people just by being you and showing that you care. Don't ever change.
Oh how touching - it's good to see your work is appreciated.
Tia
Might be a lesson to me too to take on what people say when they praise us, after all, would you tell someone they were great if you didn't believe it!
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